Why Do We Advocate on Capitol Hill?

Brain Aneurysms are a serious, potentially life-threatening medical condition that is disproportionately underfunded by the Federal Government at just over $2.00 each year per person affected. This is why advocating for Ellie’s Law on Capitol Hill each year is so critical. Ellie’s Law would authorize an additional $10 million each fiscal year for five years from the National Institute of Neurological Disorders and Stroke (NINDS) to conduct or support further comprehensive research on unruptured intracranial aneurysms, studying a broader patient population diversified by age, sex, and race.

Advocating for brain aneurysm research is crucial for several reasons:

▶️  Prevalence and Impact
Brain aneurysms are more common than many people realize, with an estimated prevalence of about 2-5% in the general population. They can affect individuals of any age, although most common in adults between 35 and 60. Given their prevalence and potential for devastating consequences, research is the key to finding effective treatments, interventions, and ways to prevent aneurysms from developing.

▶️  Lack of Early Symptoms
Brain aneurysms often do not cause symptoms until they rupture, at which point they become a medical emergency. Research focused on identifying biomarkers or imaging techniques that can detect aneurysms before rupture could significantly improve patient outcomes by allowing for early intervention.

▶️  Advancements in Treatment
While treatment options for brain aneurysms have improved in recent years, there is still much room for innovation. Research into new surgical techniques, endovascular procedures, and minimally invasive interventions can lead to safer and more effective treatments for both ruptured and unruptured aneurysms.

▶️  Lack of Awareness
Despite the potential severity of brain aneurysms, there is often a lack of awareness about the condition among the public. Many people may not recognize the symptoms or understand the risk factors associated with brain aneurysms. Advocacy efforts can help raise awareness about the signs, symptoms, and risk factors, leading to earlier detection and treatment, as well as keeping families and communities together.

▶️  Economic Impact
Brain aneurysms also impose a significant economic burden on individuals, families, and healthcare systems due to medical expenses, lost productivity, and long-term disability. Investing in research to prevent and treat brain aneurysms can ultimately lead to cost savings by reducing the incidence of ruptures and improving outcomes for affected individuals.

So, why do we advocate on Capitol Hill each year? We advocate each year because brain aneurysm research is essential to improving our understanding of this condition, developing better treatment options, identifying aneurysms before rupture, and ultimately saving lives and improving outcomes for those affected. We will continue our advocacy efforts until our voices are heard and Ellie’s Law is passed. Let’s keep our families and communities whole!