Voices Together for Change

Categories: Blog

Guest post from Christine J. Buckley ~ Brain aneurysms continue to be the underdog in the world of stroke in every way: awareness, education, advocacy and research funding. With one in 50 people in the United States walking around with an undiagnosed brain aneurysm and 30,000 people experiencing a rupture — and half of them dying — much needs to be done to improve the odds.

Fortunately, many people are working together to turn the tide. This includes the Brain Aneurysm Foundation (BAF), patients, caregivers, family members and medical professionals.

Early in March 2018, I had the pleasure of participating in two momentous events as the leader of the BAF. Each helped to make strides toward improved treatment, education and research funding.

The first involved a Neurological Devices Panel of the Medical Devices Advisory Committee, a vital part of the Food and Drug Administration (FDA). The goal of this hearing was to advocate to the FDA regarding the importance of giving well-informed patients and well-trained physicians greater access to different treatment options for brain aneurysms.

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